Of all the things we have learned along the way, the greatest comfort comes in the fact that there is strength in numbers. As we started this journey, there were few other souls that we met who could understand what we were going though. But slowly we discovered other families who are dealing with many of the same issues.
In an effort to share as much information as possible, we have established this Resources page to help others in their journey. Think of it as a trail of digital pebbles, allowing others for follow our footsetps or blaze a new trail, boldly marked so that others may follow.
Eventually, we will connect the blogs in a “webring” of connected sites, each offering a different voice and viewpoint of this complicated issue.
Facebook Support Pages:
The Jani Foundation’s mission is to provide aid to families with children suffering from mental illness by using various media including TV, blogs, and social networking to pressure state and county mental health organizations, contracted agencies, and hospitals into providing quality care for your mentally ill children. It is a place to go when you need help dealing with the system’s treatment of you and your mentally ill/autistic spectrum child. Whatever your issue, we will do our best to help, through both media awareness and our knowledge of legal requirements for care. We deal with insurance companies denying payment for inpatient care, hospitals trying to release psychotic children before they have stabilized, and Child & Family Services and other agencies trying to break up your family rather than help you. Our goal is to give is to publicize the struggles of families with mentally ill children against those suppose to help, publicize poor or insufficient care for mentally ill children, and give parents a voice that puts them in control of their child’s welfare. The Jani Foundation does not discriminate. Everyone whose lives are touched by mental illness are welcome.
Yahoo Support Groups:
The Online Child Mental Illness Parental Support Network, created by Michael Schofield & Tony Dinkel (father of a child with Asperger’s Syndrome/Bipolar), exists to provide a social support network for parents raising severely autistic and/or mentally ill children. Whether your child has been diagnosed with bipolar, schizophrenia, psychosis NOS, or a Spectrum disorder, we do not discriminate. All are welcome. Currently we have members from all across the United States, Canada, and Australia. It is my hope that eventually we will have enough members so that one day there will be another parent with a mentally ill child close to you who you can turn to for support and assistance (and vice versa). For now, come share your story with others who know exactly what you are going through. You don’t have to be alone with this anymore. Since this group is unmoderated, it is a closed, non-public site open only to members. Click this link to request membership.
The Online Adult Mental Illness Support Network, a sister private group created to offer support and connection between adults living with mental illness. This is a brand new group and is still in its early stages, so please join and share. Like the Child Mental Illness Group above, this group is unmoderated, non-public, and open only to members to protect member privacy.
Adventures in Bipolar Land (Kristen and her son were featured on “Bipolar Mysteries” during Discovery Health’s 2010 “Psych Week”)
More Than Words (The Wohlenbergs from 20/20’s “Haywire”)
Books & Story Collections
Nutterville Stories-This Book, “Nutterville… and Other True Stories of Coping with Mental Illness” is a tribute to many troubled yet glorious people. Their stories told by a superb storyteller are deeply moving and will stay with you for the rest of your life.